Children of the stars|RAINBOW MISSIONS

There are a group of children in the world who are called “Children of the Stars.” In fact, they are just like other children, both innocent and cute. They are not deaf, but they will not hear the voices in this world. They are not dumb, but they will never know how to speak. They all have cute faces and beautiful eyes, but their eyes are faint and they always avoid eye contact. Since they can’t understand their relationship with others, it’s also difficult for them to understand the emotions and feelings of others. No matter what you say or do, they don’t care. They are always living in their own world. We call them “Children of the Stars”; medically these children are known to be autistic. People who have autism are just like the stars in the sky, one person and one world, shining alone. Even when facing someone who loves them, like their parents, they can’t see and hear it. Their world is cold and they don’t feel the warmth of the world.

閱讀中文版 (來自星星的孩子).

When Lele was born, it was no different from other babies. However, day after day, his parents found that LeLe did not show signs of vocalization even though Lele was not deaf. Later, not only did Lele not like to talk but he also began to ignore people, ignore the things around him, and play alone.

Lele’s parents thought Lele was becoming more and more strange, so they decided to take him to the hospital for examination. They found out that Lele was a child with autism. His parents knew there is no medication that can help Lele to fully recover from autism; only reliable rehabilitation training can help children learn how to be more independent and take care of themselves. Lele’s mother decided to resign from work and focus on taking care of him. Lele’s dad earned money to pay the cost of rehabilitation. Lele’s mother also took him to rehabilitation institutions in different places to help him train well and hoped that he would slowly walk out of his closed world.

In fact, rehabilitation training is of great help to people with autism. Early intervention is of course the most ideal. However, rehabilitation training for children in the correct way at different times will also have different positive effects. At present, the most effective treatment for autism is to conduct “one-on-one” intensive behavior training for different children, so that they can gradually learn basic communication skills, slowly get out of their closed world, and learn to take care of themselves.

On March 15, 2019, Wang Xinhui, deputy of the National People’s Congress and the principle of the Autistic Children’s Rehabilitation Center of Inner Mongolia Autonomous Region, responded to the interview:

“When it comes to persistence, I especially want to ask everyone a question. What is your greatest wish? The most hearty answer I have heard over the years is, “I hope to live a day more than my child.” Said this sentence is a mother of an autistic child. She is desperate. She said, if one day I will die, I will definitely take my child together, because she does not know that the child should be entrusted to who. When she said these words, she was very calm, but I burst into tears. Her child, like all children with autism, lives alone in his own world. They do not dare to look at other people’s eyes, do not communicate with others, refuse to embrace, refuse to kiss, and cannot understand what is family, friendship, and love that we are used to. They can’t understand their parents’ love for children, and they can’t respond to some of their parents’ love needs. They are all such people playing alone in their own world. Sometimes they are hungry and sick, but they can’t say, “Mom, I am hungry” like a normal child. Therefore, for families, they have to face not only the cost of rehabilitation treatment day after day, but also the day-to-day emotional suffering, not seeing hope and dare not imagine the future.

In China, it is estimated that at least 100,000 autistic children will be discovered each year, that is, millions of families are living in such a predicament. Autism is discovered early in childhood and will be associated with life. At the current level of medical care at home and abroad, there is no reason to find out why and there is no better treatment. In the future, they will face more problems after they become adults, work, life, discrimination and so on. So now it may be a burden on the family, but in the future, it may be the burden of the whole society. As a representative of the National People’s Congress, I am taking advantage of this opportunity given to me by the General Assembly… I invite all the audience and friends, I hope that you can also care for these children who are called “Children from the Stars” and let them also have the opportunity to integrate into society. Have the opportunity to live a normal, equal and dignified life.”

Remember Zhuang Zhuang’s story from our annual fundraising dinner last fall? He is one of many children we support in an autism center in CC. Because he also has cerebral palsy, walking and going up and down stairs is very difficult for him. However, his family has never given up, and the teachers at the center have also carefully taught Zhuang Zhuang. After a period of treatment and training, Zhuang Zhuang has made good progress in communication and interaction with other people, and his ability to take care of himself. Compared to the videos we saw last year at our annual fundraising dinner of Zhuang Zhuang walking down a set of stairs, he has continued to show growth and progress in just four months.

The love of Christ Jesus inspires us. Are you willing to open your life, live this love, and be a blessing to others? Rainbow Missions sincerely invites you to walk with us. If you are willing to support “Children of the Stars” and their families in China, please send an email to rainbow@therainbows.org for more information, or send checks payable to “Rainbow Missions” directly to Rainbow Missions at PO BOX 40145, Bellevue, WA 98015. Please indicate “Operation fund”, “Short Term Service Trip (STST)” or “Sponsorship”, and please include your email address for a donation receipt. Thank you!


來自星星的孩子

世界上有一群小孩子,他們被稱為「星星的孩子」。其實他們都跟其他人小孩子一樣,既天真又可愛。他們不是聾子,但是對世界的聲音充耳不聞。他們不是啞吧,但從來不知道該如何開口說話。他們都擁有可愛的臉孔和漂亮的雙眼,卻眼神飄忽,時刻躲避著與人目光對視。由於不能理解自己和他人的關係,所以難以體會別人的情緒和感情,無論你說什麼,做什麼,他們也不理不看—-永遠活在自己世界裡的他們,就是「來自星星的孩子」,醫學上就是「自閉症」。患有自閉症的他們,猶如天上的星星,一人一個世界,獨自閃爍。儘管是對著愛他的人,他的父母,也都聽不見看不見。他們的世界是冰冷的,感受不到世間的溫暖。

樂樂剛岀生時,與其他嬰兒並無分别,只是日子一天天的過去,父母發現他沒有發聲的跡象,但樂樂不是聾子。到後來,樂樂不單不愛說話,也開始不看人,不理會身邊的事物,只是一個人自己玩。

父母看著越來越陌生的樂樂,就帶他去醫院檢查,才發現樂樂是自閉症患兒。父母得知自閉症是無藥可治,只可靠康復訓練令小孩生活能自理,媽媽就把工作辭去,一心一意照顧他。自此,爸爸努力賺錢籌措樂樂的康復費用,媽媽則帶著樂樂到不同地方的康復機構,讓樂樂受訓,讓他慢慢走岀封閉的世界 ……

其實康復訓練對自閉症患者有極大的幫助,早期干預當然最為理想,但在不同時期以正確的方法對患兒進行康復訓練,也會得到不同程度的積極效果。目前,自閉症最有效的治療方法,是針對不同患兒進行「一對一」的強化行為訓練,讓他們逐漸學會基本的交流技能,慢慢走出封閉的世界,學會自理生活。

本年3月15日,全國人大代表、內蒙古自治區自閉症兒童康復中心校長王欣會回應採訪:說到堅持,我特別想問大家一個問題,您最大的心願是什麼?這麼多年我聽到的最揪心的答案是,「我希望能比我的孩子多活一天」。說這句話的是一個自閉症兒童的媽媽,她很絕望,她說,如果有一天我要是離開人世了,我一定會帶著我的孩子一起走,因為她不知道應該將孩子託付給誰。她說這些話的時候很平靜,但是我聽得卻是淚流滿面。

她的孩子和所有的自閉症兒童一樣,獨自生活在自己的世界裡,不敢看別人的眼睛,不與人交流,拒絕擁抱、拒絕親吻,對我們平常人習以為常的親情、友情、愛情都是不理解的;他們不能理解父母對孩子的愛,更不能回應父母親的一些愛的需求。

他們都是這樣一個人在自己的世界中獨自玩耍,甚至有的時候他們餓了病了,都不能像正常的孩子一樣說上一句「媽媽,我餓了」。所以對於家庭而言,他們要面對的不光是日復一日的康復治療費用,更多的是日復一日的精神煎熬,看不到希望,也不敢去想像未來。

在國內,據測算,每年至少要新增超過10萬個自閉症兒童,也就是說,有上百萬個家庭正生活在這樣的困境中。

自閉症是在兒童早期發現的,並且會伴隨終身,以目前國內外的醫療水平,還沒有找到原因是什麼,也就沒有更好的治療辦法 ……

未來他們成人後所面臨的問題可能就會更多,工作、生活、被歧視等等。所以說現在來看可能是一個家庭的負擔,但是未來就有可能是整個社會的負擔。

今天作為全國人大代表,借助大會給我的這個機會…… 我懇請所有觀眾朋友們,希望你們也能夠關愛這些被稱之為「來自星星的孩子」,讓他們也有機會融入社會,有機會過上正常、平等而有尊嚴的生活……

親愛的彩虹家人,還記得在我們去年十月的週年籌款晚會上分享的其中一個故事的主角壯壯嗎?他是我們在CC支持的一所自閉症中心的其中一個患兒。他因為同時患有腦癱,走路和上下樓梯都十分困難。但家人永不言棄,自閉症中心的老師也悉心教導,經過一段時間的治療訓練,壯壯在與別人的交流互動、情緒的表達,並自理的能力等方面,都有很好的進展,對比在去年十月的週年籌晚會上看到壯壯下樓梯的片段,在短短的四個月壯壯又已經進步了很多!

基督耶穌的愛激勵我們,您願意敞開您的生命,把這一份愛活出來,成為別人的祝福嗎? 彩虹工程摯誠邀請你與我們同行,倘若你願意在金錢上支持服務隊或捐款幫助更多「星星的孩子」及他們的家庭,請聯絡我們(206)-734-7000或致電郵rainbows@therainbows.org 索取更多有關資訊,或直接把支票(抬頭請寫Rainbow Missions)寄往Rainbow Missions, PO BOX 40145, Bellevue, WA 98015,及註明「機構發展」,「短期服務隊」或「助學計劃」,並請填寫電郵地址,以便寄發捐款收據。謝謝!簡介: 彩虹工程是依據非牟利機構組織法501(c)(3) 在美國西雅圖註冊的慈善機構。彩虹工程以基督的愛為中心,服務中國殘障兒童及家庭。歡迎瀏覽網址: www.therainbows.org。

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